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Alopecia Universalis & Totalis Support

Share your experiences & stories about Alopecia Universalis & Totalis

Featured · Started by admin
on Wednesday, November 23 2011, 10:22 AM ·

Hi Everyone!!

To get the discussion flowing, please share your experiences and stories about Alopecia Universalis & Totalis.

Sharing such stories, may help others!

 

xxx

No tags were assigned to this entry
3 responses
  • Replied by JEAN on Tuesday, January 24 2012, 03:04 PM
    THERE DOESN'T SEEM TO BE ANY DISCUSSION GOING ON! WHERE IS EVERYONE WITH ALOPECIA? I AM A WOMAN OF 60 WITH LICHEN PLANOPILARIS WHICH RESULTS IN PERMANENT HAIRLOSS. IS THERE ANYONE ELSE OUT THERE WITH THE SAME OR SIMILAR THAT I CAN SHARE EXPERIENCES WITH? MY CONDITION SEEMS TO BE TOTALLY NOT UNDERSTOOD BY DOCTORS. EVEN THE DERMATOLOGISTS HAVE NO ANSWERS.
    Hide
  • Replied by rachieH on Friday, March 02 2012, 05:57 PM · Edit
    Very sad that there is no discussion going on here as I was very excited to see this in the recent TRENDCO newsletter. There seems to me to be very little if no support for people with alopecia. I lost all my hair at 33 and have been living with it ever since. The service I have received at TRENDCO has been fabulous - it's so important to feel comfortable and not be bullied into something you don't like. That was my experience at other places - the wigs had aged me by about 20 yeasr! Most days I cope with the hair loss (head and body hair) but the lack of eyebrows and eye lashes still gets me down. I have had a bad experience followed by a good experience with semi-permanent make up and I spend a small fortune at Boots on eyelashes. Anyone else got anything to share?
    Hide
  • Replied by admin on Monday, March 05 2012, 09:29 AM
    Thank you ladies for getting the discussions started! It is great to hear about your experiences. We are spreading the word for TAG and are getting lots of views but no one seems to be sharing! If you have a support circle of friends, please spread the word about TAG! We need more support for people with alopecia!

    Thanks again

    xxx
    Hide

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